Help us create a brighter today and a better tomorrow for everyone affected by Cockayne syndrome and related disorders.
At the Share & Care Cockayne Syndrome Network our mission is to help improve the lives of children and individuals living with Cockayne syndrome and related rapid ageing progeria disorders through support, education, and research.
We are fundraising to help children and their families with Cockayne syndrome, realated disorders, and ageing diseases.
Share and Care Cockayne Syndrome Network creates a brighter today and better tomorrow for everyone affected by Cockayne syndrome and related progeria disorders.
- We pursue the most innovative research and make sure that it receives proper funding.
- We create an informed public and educated patient community to increase early diagnosis and ensure support and treatments.
- We provide relentless support to families, caregivers, and healthcare providers.
We will not rest until we've achieved victory—a world in which everyone with Cockayne syndrome or a related disorder receives a proper diagnosis, gets the necessary treatment, and lives a longer and fuller life.